Six Fantastic Resources for Type 1 Diabetes Support & Learning #T1D #Diabetes

Family Diabetes Crossroads

I’ve been a mom of a child with Type 1 diabetes for a few years now, and am always on the lookout for new resources, support and strategies to help us in our journey. Here are my top six Type 1 diabetes support sites. Each has helped my family in a magnificent way and I hope this list will help others.

T1D MOD SQUAD – This wonderful group’s mission is to equip the parents and caregivers of children diagnosed with Type 1 diabetes. They seek to educate parents on their T1D children’s rights, and help advocate for and with them until they are heard. We are a community of parents, teachers, and family members that come together to advocate for, and support each other and our T1D children. T1D Mod Squad is a registered not-for-profit organization. The Facebook group was a lifesaver for me when my child was diagnosed with T1D, and I still learn a lot from the discussions. I have made several new friends both locally and online as a result of the group, and it’s wonderful knowing that if you are wide awake after a 3 am blood sugar check, there is always someone to chat with online. If you’re a caregiver of a child or teen with T1D, stop by the website for valuable downloads, blog posts, access to the forum, and more.

Juicebox Podcast – This was the first podcast (of any kind) that I had ever listened to on a regular basis, and now I am addicted – both to this podcast, and to podcasts in general. I have a subscription through the iTunes podcasts app and get new episodes delivered to my iPod. Hosted by Scott Benner, whose daughter Arden has T1D, the show features intimate conversations of living and parenting with Type I diabetes. I love Scott’s informal style and how he has such a wide range of guests – everyone from fellow parents, to endocrinologists and diabetes educators, to the movers and shakers in diabetes research and technology. I have learned to become more aggressive with insulin as a result of listening to this show, which has led to a lower A1C for my daughter. I also feel very informed from listening to this show on a regular basis.

Diabetes Connections – This podcast is hosted by Stacey Simms, mother of a son with T1D. This podcast features prominent diabetes advocates, authors and speakers and includes personal stories of connection from people with diabetes and their friends and family. Stacey is an award-winning radio news host and TV anchor/reporter with more than 20 years of broadcast news experience, and her polish shows in her delivery. I recently discovered this program and quickly subscribed. As a former newspaper reporter, I admire Stacey’s professionalism and zest for bringing informative content to her listeners. In the short time I’ve been listening, I’ve already been introduced to some new resources.

Sugar Surfing – This web site features a book that has heavily influenced how we treat high and low blood sugars in my house. The term Sugar Surfing™ was coined by Dr. Stephen Ponder and Kevin McMahon in 2013. Ponder, an endocrinologist, shares his 50 year journey with Type 1 diabetes starting with a diagnosis at age nine that changed his life. He shares his personal story including how he developed a controversial method for managing blood sugars in the moment. While many advanced users of continuous glucose monitoring are aware of some of these moves, it took Dr. Ponder to package these tips and tricks in an easy to follow recipe for success. Both Scott and Stacey have interviewed Dr. Ponder, and I highly recommend buying the book and listening to those interviews.

DiaTribe – This is a publication that I get delivered to my email in-box. DiaTribe seeks to empower readers with useful, actionable information that gives them hope for a better future, and helps them live happier and healthier lives. Their tag line is “Making Sense of Diabetes.” Their team has access to the world’s leading diabetes and obesity researchers and clinicians. They attend all the relevant conferences, and have developed unmatched expertise in this area. Most important, they have personal connections to diabetes – many of the staff have it themselves, and this perspective influences everything they do and write. DiaTribe covers a wide variety of topics related to both Type 1 and Type 2 diabetes from drugs to devices, and from research opportunities to regulatory decisions. By reading this publication, I am informed of the cutting edge news in technology, research, and other topics related to diabetes.

Glu – This site is really unique in that every morning you can have a Question of the Day delivered to your email. Alternatively, you can also download their new app. I very much enjoy answering the daily question and reading the comments posted by other members. It’s often an eye-opening experience. Glu is an online community of T1D Exchange, a unique nonprofit organization focused on driving faster, better research to improve outcomes in Type 1 diabetes. The T1D Exchange drives faster, better research by including the community of people living with or caring for someone with Type 1. Too often, traditional research has excluded their voice – the voice that matters most. On Glu, the community’s experiences and insights drive and inform research studies that address unmet needs and real-world challenges of living with T1D. While I haven’t participated in the groups that are offered, many find those helpful. I also enjoy the informative blog posts. If you or someone you love has T1D, go check it out.

For more of my Type 1 diabetes posts, visit this archive.

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Stacy Juba's Characters At A Crossroads Blog

Comments

  1. Thank you, Stacy. Really appreciate the links!

  2. karri andersen says

    I provide free books to children. I also have a Club that provides gifts and Diaversery Medals. email me , or you can go to my website http://www.ihavesiabetesbook.com . I would love to help!

  3. karri andersen says

    that is the wrong website! http://www.ihavediabetesbook.com